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HTLVaware

​​A Virus Does Not Discriminate Neither Should We
As a community we want to promote proven effective transmission prevention strategies against one of the most potent human carcinogens, Human T cell Leukemia Virus subtype 1 (HTLV-1)

UPDATE: Time to eradicate HTLV-1: an open letter to WHO, by Global Virus Network (GVN) Scientists & Activists (click for link)

Let’s eradicate HTLV-1 together!
How can we do this?
HTLV clinics: assessment, treatment & follow up care
•HTLV positive individuals need follow up care
•Assessed for HTLV-1 associated diseases (examination & blood tests)
•Treatment where needed
•Support for the individuals & families

Ongoing expansion of HTLV-1 testing
•Sexual health clinics: to support HTLV carriers & promote safe sex
•Antenatal testing to help HTLV positive mothers & to advise mothers against breastfeeding
•Organ donors: to exclude HTLV-1 positive donations
•People who inject drugs:  to support HTLV carriers,  promote safe sex & safe injecting

Swift turnaround of HTLV testing & results (serology & viral load)
•Faster time to disease assessment & identification
•Treatment provided as early as possible, if required

HTLV Education: Increase awareness & knowledge
•Access to up-to-date & evidence-based WHO HTLV-1 Fact Sheet & web-page will allow health care providers to diagnose HTLV-1 & its diseases more often and in a timely fashion
•Wider access to HTLV information & resources for patients, families & the wider population

Find out more about recent developments & updates

"
We are each on our own journey. Each of us is on our very own adventure; encountering all kinds of challenges, and the choices we make on that adventure will shape us as we go; these choices will stretch us, test us and push us to our limit; and our adventure will make us stronger then we ever know we could be.
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Aamnah Akram
Home- What is HTLV? HTLV-1, HTLV-2, Diagnosis Asymptomatic Carrier HAM/TSP, ATLL Other Associated Diseases
Simple Science Contact Us, Further Information
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We felt that too many patients with HTLV and their relatives, too many clinicians and scientists did not know what HTLV was. We felt that everybody has the right to quick, accurate and easily accessible information online, but especially people who are suffering with HTLV and those who care for them.