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What is HTLV?

HTLV stands for Human T cell Leukemia Virus
​ It is a retrovirus that infects a type of white blood cell called a T-cell or T-lymphocyte

HTLV-1 is a global problem affecting individuals in countries spread far & wide; endemic to indigenous & disadvantaged communities in many countries such as Japan, West-Africa, Caribbean Islands, Iran, Australia, Brazil & Peru.

There are two main types, and four subtypes, of HTLV: HTLV-1, HTLV-2, HTLV-3 and HTLV-4. An estimated 5 to 10 million people world wide have HTLV, the vast majority not knowing that they carry the virus because they remain without symptoms & have not been tested for the virus.  About 1 in 20 people will develop disease, mostly due to HTLV-1 but this usually occurs much after initial infection.

The HTLV community – patients, friends & family, physicians, experts in the field – stand strong & together in supporting affected individuals & in the proactive promotion & implementation of effective transmission prevention strategies improving the sexual & reproductive health, & life expectancy, of HTLV-1 affected communities

Just like HIV-1, the transmission of HTLV-1, a blood borne & sexually transmitted virus, is preventable. So far, the World Health Organization (WHO) has promoted 17 different prevention strategies to reduce the transmission of other blood borne & sexually transmittable viruses, such as Hepatitis B & C and HIV, but not for HTLV-1. We would like to see this corrected.

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We felt that too many patients with HTLV and their relatives, too many clinicians and scientists did not know what HTLV was. We felt that everybody has the right to quick, accurate and easily accessible information online, but especially people who are suffering with HTLV and those who care for them.
  • Home
  • Global strategy
  • Australia Forum Update
  • Meet our reps
  • Meet the experts
  • What is HTLV?
  • HTLV-1
  • HTLV-2
  • Diagnosis
  • HTLV diseases
    • Asymptomatics
    • HAM/TSP
    • ATLL
    • Other Diseases
  • Treatment
    • Asymptomatics
    • HAM/TSP
    • ATLL
    • Science >
      • History & More info
      • Ongoing trials
  • Global
    • United Kingdom
    • United States
    • Brazil
    • Argentina
  • Contact Us
    • Further Info
    • News & Events
    • HTLV Resources
  • Blog
    • Your Journey